Xengie’s PhD topic is part of Legality-Attentive Data Scientists (LeADS), an EU funded project, with the IRISC lab interested in improving the consent process to be more transparent, secure, and private user-centred for eHealth data sharing in the EU.
Prior to joining the lab, they received a Master’s in Bioinformatics from the University of Oregon and a Bachelor’s in Biology from Willamette University where their interest in collaborative research began. Prior to joining the Interdisciplinary Centre for Security, Reliability and Trust (SnT) at the University of Luxembourg, they worked as a bioinformatician at the Stowers Institute for Medical Research (Gerton Lab) and at Sage Bionetworks in the USA.
Research Interests:
Xengie’s main research questions focus on understanding how consent is currently implemented, how innovative and appropriate models of consent can build trust and transparency, and how components of the consent process affect engagement, empowerment, and trust. More generally, they have wide interests in feminist data science, human-centred design, and creating more equitable systems of data management and information dissemination.
